caring@home for Aboriginal and Torres Strait Islander Families
The aim of this project is to support the provision of palliative care at home for Aboriginal and Torres Strait Islander people. When care at home is preferred, it can be provided to help connect family, culture, community, country and the spiritual wellbeing of Aboriginal and Torres Strait Islander people.
Includes resources to assist Aboriginal and Torres Strait Islander people who choose to be cared for and remain at home for the final stage of their life-course. Click for link
Palliative Care Australia (PCA):
Palliative Care Australia (PCA) aims to improve the quality of life of all Australians living with a life-limiting illness/condition and their families, and represents all who work in palliative care services. They have developed resources to assist the Aboriginal and Torres Strait Islander Peoples, their communities, and health professionals working within communities to ensure approaches and practises are culturally safe and respectful. Click for link
‘Into the Dreaming’: A Palliative Care Guide for Aboriginal and Torres Strait Islander people through ‘Sorry Business’
This resource kit was developed in NSW to provide culturally sensitive, respectful, responsive and appropriate methods of communication when dealing with health care and Sorry Business with Aboriginal & Torres Strait Islander people. Intended to help local Aboriginal communities feel more welcome in palliative care settings and start inclusive and culturally appropriate conversations about end of life planning. Click for link
IPEPA Resource Directory: IPEPA Culturally-Responsive Palliative Care Workshop
Resources include reading materials, videos and activities Click for link
Australian Indigenous HealthInfoNet
The Australian Indigenous HealthInfoNet Palliative care and end-of-life portal is designed to assist the health workforce who provide care for Aboriginal and Torres Strait Islander people, their families and communities. It seeks to support both clinicians and policy-makers in accessing resources, research and projects on palliative and end-of-life care for Aboriginal and Torres Strait Islander people. Click for link
CareSearch (Flinders Uni SA)
This site brings together a range of resources and information to help the health care workforce and carers in providing palliative care for Aboriginal and Torres Strait Islander peoples, acknowledging that culturally safe and responsive care is an essential part of good care. Click for link
Queensland Centre for Palliative Care Research & Education (CPCRE)
CPCRE aims to increase health professionals’ understanding of the needs of Aboriginal and Torres Strait Islander patients and families, and increase knowledge about palliative care amongst Aboriginal and Torres Strait Islander Health Workers, Liaison Officers and other health professionals. Click for link
Palliative Care Queensland
Click for link
Includes Queensland Health’s ‘Sad News, Sorry Business: Guidelines for caring for Aboriginal and Torres Strait Islander people through death and dying’, researched and developed by the Aboriginal and Torres Strait Islander Cultural Capability Team. Click for link
Also includes a toolkit aimed at providing quality and user-friendly resources to support appropriate palliative care provision for Aboriginal and Torres Strait Islander peoples.
The Yarning about Sad News and Sorry Business – An Engagement and Consultation Toolkit was developed in collaboration with Health Consumers Queensland, gathered insights and perspectives from Aboriginal and Torres Strait Islander peoples living in Queensland on engagement and consultation processes in relation to palliative care. Click for link
palliAGED Palliative Care Aged Care Evidence – Aboriginal and Torres Strait Islander peoples
Includes resources which may be useful to those providing care to Aboriginal and Torres Strait Islander peoples, noting that Aboriginal and Torres Strait Islander people are a diverse group of peoples, made up of many different nations and language groups. Aboriginal and Torres Strait Islander culture is a living culture, made up of both contemporary and traditional practices. Click for link
Aboriginal Health and Medical Research Council of New South Wales (AH&MRC)
Click for link
The AH&MRC Resource Centre contains the downloadable My Journey to Dreaming Diary, which can be used by patients to keep personal and medical information in one place. Click for link
And also the Journey to Dreaming Toolkit, which to provide high quality information to help Aboriginal and Torres Strait Islander families and their healthcare workers provide family-centred palliative and end-of-life care for a loved one. It also contains some important information that might be useful for individuals needing end-of-life care. Click for link